Hayden's Hope

To Cure Friedreich's Ataxia

 

  


   

 

 

 

Imagine slowly watching your child lose the ability to walk, run…play.  Imagine going to the doctor for answers and hearing him say, “I’m sorry, your child has Friedreich’s Ataxia and there is nothing we can do.”  Imagine researching “Friedreich’s Ataxia (FA)” and finding out that it is a relentless, genetic disease that will not only rob your child of the ability to walk, but also to speak, see and hear…  The devastation doesn’t stop there.  FA also causes scoliosis, diabetes and heart disease with the outcome being an early death, usually in the late teens or early adulthood.  These are things we never imagined…until it happened to us.

Our beautiful 11 year old son, Hayden, was diagnosed with Friedreich’s Ataxia in May, 2012.  This is not the first time our family has been affected by this form of muscular dystrophy.  Our niece, Aubrey and nephew, Nick passed away in 2010 from complications associated with FA.  We realize the prognosis far too well.  That is why we have chosen to fight FA with everything we have.  However, we can’t do it alone.  We need the help of people like you to give Hayden the best fighting chance we can.

 

This picture was taken at St. Mary's Hospital in Rochester, MN.  Hayden was there for another round of appointments and had just finished his second eccocardiogram. We were leaving the hospital and had walked out the door when we noticed Hayden wasn’t with us.  We looked behind us and saw this…  He spied this monument and was drawn to it.  The sun illuminating the cross and our little boy was breathtaking.  It brought us to tears...but also filled us with inspiration and faith. We hope it touches your heart as much as it does ours.  Notice the writing on the base of the structure.  It reads

“And He healed all of them” 

 


Please consider joining us in our hope of finding a treatment or cure for Friedreichs' Ataxia.  Because FA is a rare disease, and only effects 5,000 people in the US, we need help from people like you!  Every dollar counts and the urgency is great!!  Donations benefit FARA (Friedreich's Ataxia Research Alliance), MDA (Muscular Dystrophy Association) and the Hayden's Hope Benefit Fund to Cure FA. 

Please click on the link to make a donation today using Pay Pal: