Together we WILL cure Friedreich's Ataxia!
SAVE THE DATE!!
Family Fun Day
and the Warrior Run
and the MDA!!
Imagine slowly watching your child lose the ability to walk, run…play. Imagine going to the doctor for answers and hearing him say, “I’m sorry, your child has Friedreich’s Ataxia and there is nothing we can do.” Imagine researching “Friedreich’s Ataxia (FA)” and finding out that it is a relentless, genetic disease that will not only rob your child of the ability to walk, but also to speak, see and hear… The devastation doesn’t stop there. FA also causes scoliosis, diabetes and heart disease with the outcome being an early death, usually in the late teens or early adulthood. These are things we never imagined…until it happened to us.
Our beautiful 9 year old son, Hayden, was diagnosed with Friedreich’s Ataxia in May. This is not the first time our family has been affected by this form of muscular dystrophy. Our niece, Aubrey and nephew, Nick passed away in 2010 from complications associated with FA. We realize the prognosis far too well. That is why we have chosen to fight FA with everything we have. However, we can’t do it alone. We need the help of people like you to give Hayden the best fighting chance we can.
This picture was taken at St. Mary's Hospital in
“And He healed all of them”